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Joshua's Story

Our son Joshua was born on June 1, 2007 at 26 weeks, 3 days gestation. He weighed 1 pound, 7 ounces and measured 12.5 inches. He was taken to the Neonatal Intensive Care (NICU) and remained there for 5 months and 7 days before finally coming home. I had been chronically ill my entire pregnancy and ended with severe Preeclampsia and critical Postpartum Preeclampsia. Because of the prolonged Pre-E, Joshua had developed significant Intra Uterine Growth Retardation (IUGR), which was another reason the emergency c-section I underwent was necessary. At 26 weeks, Joshua was only measuring the size of a 24 weeker. After his birth I remained in the ICU and was unable to see him for three days. My blood pressure remained out of control, I lost complete vision in one of my eyes and I was showing signs of stroke. It was truly like an out of body experience. Thankfully, I began to stablize and was able to concentrate on my new preemie. Joshua went through many difficult, painful and trying complications. We are so very blessed and thank God that He carried Joshua through those long 5 months.

Visit Joshua's NICU journey homepage Here... A step by step account of Joshua's early life and fight for survival. (Keep in mind the entries are in descending order... I think I was much more positive in the earlier posts!)

This is a list of preemie complications he endured in the NICU:
Three months of conventional and high frequency JET ventilation
CPAP, VapoTherm & Nasal Canula Oxygen for the remainder
Bowel Perforation
Abdominal Penrose Drain to repair perforation
Patent Ductus Arteriosus/Heart Surgery
Chest Tube after that surgery
Liver damage from prolonged TPN resulting in immense fluid retention
Retinopathy of Prematurity Laser Eye Surgery
Continuous Blood and Platlet Transfusions
Undeterminable Infection and/or Hematology Issue
Bilateral Inguinal Hernia's surgically repaired
Abdominal Hernia surgically repaired
Intolerable Feedings/Aspiration
Went home on a feeding pump, Nasogastric Tube (NG) & Oxygen

smile

Some challenges Joshua faces today:
Gaining weight and eating
Chewing Solids
Oral & Tactile Defensiveness
Sensory Processing Disorder
Paralyzed Vocal Cord
Aspiration
Bronchial Pulmonary Dysplasia (BPD) - Lung disease
Upcoming ENT exploratory surgery, possible adnoidectomy
Fluid in ears with question of Auditory problem
Significant Speech & Communicative Delay
OT, PT, Feeding & Speech Therapies
Questionable cysts in brain
Upcoming cardiology heart contrast study under anesthesia
Upcoming urology surgery (second procedure)

dino1
As scary as most of these issues sound, Joshua is one heck of a fighter. We call him our little trooper! He is resilient and from the outside, one would never recognize Joshua faces all of these obstacles. He is known to put a smile on everyones face!

4 comments:

  1. Hi there! Im so happy to read that your little Joshua pulled through! I too am a Preeclampsia Survivor and I lost my daughter at 31 weeks. This disease is horrible..but your story gives me hope :)

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  2. Your son is an amazing fighter! Bless his heart and yours. It still amazes me how much tiny babies fight. I had one NICU nurse tell me that is why his specialty was neonatal. He said it is the littlest beings that fight the hardest to live. My little ones did not go through as much as your little one, so I can't even imagine your fears.

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  3. I just stumbled upon your blog and wanted to tell you how beautiful and strong Joshua is! I had twin boys in Nov. 2009, also at 26+3 and they spent 5 months and 1 day in the NICU. Although some of our complications are different, some are shared. All the best to you and Joshua and to continued strength and resilience!

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  4. im so happy that me and my mom are alive

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