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Saturday, May 29, 2010

Early Birthday Presents...

It looks like it's going to be a Buzz Lightyear, Sheriff Woody, Spongebob Squarepants, Lightning McQueen and Elmo birthday! We've got a very excited 3 year old on our hands this year. He is simply terrific to us, even with his quirky speech/language! Yesterday we received a box from my Aunt Maureen, Joshua's great Aunt. The second we opened it up his face lit up. Stuffed inside was none other than his favorites... gifts wrapped in Buzz Lightyear and Spongebob wrapping. We spend 30 minutes opening everything and examining it with such exlamation. There were a lot of "Bobbie's" and "Bee's" lol. Bobbie of course is how Josh says Spongebob and Bee means Buzz Lightyear. It was so adorable. I am so bummed that I let Josh open them without Nick there to watch though. But I got most of it on camera for him and Aunt Moe to see from afar! This is the video I put together. Be sure to scroll to the very bottom of this page first to turn off the music player so you can hear the video audio.

Friday, May 14, 2010

The innocence of a child...

Josh and I were driving to therapy today and there was this billboard of a saluting marine on the side of the road. As soon as he saw this he started saying, "All Aboard." This is how he refers to The Polar Express movie and he holds his hand up to his mouth like he is shouting it. It happened to be his absolute favorite movie from November of 2009 through February of 2010. This span was only so short because I took the stinking movie away and put it in safe keeping so that he will know this as a special Christmas movie and yearly tradition in our home. I know, I am a mean mom :) Anyway, Joshua's innocence dawned on me when I saw him pointing to the marine in uniform and realized he was thinking it was that of a conductor. Well, duh Melanie. He doesn't know of evil, harm, fighting, death, destruction or war. So how could he recognize a marine then? These are the thoughts I was thinking to myself. I just found this to be absolutely precious and I wanted to tack it down as another memory I can read about in 20 years. This is how nutty I have become... On the way back from therapy, I found the billboard again and cut a u-ee to snap a pic of it. Take a look. A permanent snapshot of a moment in time.

Wednesday, May 12, 2010

Real Love...

Wow, this is so inspiring. I grabbed it from the blog of an extremely strong mother whose blog I've recently been following. Check her story out here and put her son and family on your prayer lists if you can. He's a little fighter too! I believe this poem is true to the hearts of all special needs moms and it is so beautiful.

A Special Child

You weren’t like other children,
And God was well aware,
You’d need a caring family,
With love enough to share.

And so He sent you to us,
And much to our surprise,
You haven’t been a challenge,
But a blessing in disguise.

Your winning smiles and laughter,
The pleasures you impart,
Far outweigh your special needs,
And melt the coldest heart.

We’re proud that we’ve been chosen,
To help you learn and grow,
The job that you have brought us,
Is more than you can know.

A precious gift from Heaven,
A treasure from above,
A child who’s taught us many things,
But most of all, “Real Love.”

Friday, May 7, 2010

See no evil, hear no evil, speak no evil...

I took some funny, but cute, pictures of Joshua today. I generated the idea from the hours I have been thinking about and contemplating his enrollement in the early intervention school program for children with special needs. He will be starting in August if everything goes as planned. He will go to school just like the elementary kids do, which is 5 days a week, 6 hours each day. This seems like such a good opportunity for him and Nick and I believe that it is something that he really needs. I've just been thinking about my sweet and innocent boy learning not so sweet and innocent things from some of the behaviorally challenged children he will be among. I know I can't prevent this and it is a normal thing kids go through. I just hate the thought of tainting Joshua's precious personality. As it is now, he see's no evil, hears no evil (well, for the most part lol), and definitely speaks no evil. Hence, my corny pictorial idea. I will just have to keep praying that he doesn't change once he has been in the program for a while, because I truly believe he is going to have so much fun and learn things he is unable to grasp at home.

A couple more pics from today...

Thursday, May 6, 2010

A musical soul...

Just wanted to drop a couple photos here. Joshua certainly has his dad's love for music, and it isn't something we taught him. He dances and nods his head to the beat of R&B and (afraid to admit it) Rap music. Of course he would have to choose the worst genre there is! He loves watching youtube and listening to music with these Bose headphones recently. I got some cute pics of it.

ear2 ears1

Dirty Feet...

A sensory child comes with little quirks most parents wouldn't find very amusing. I on the other hand, being a sensory mother, can find a sort of joy in the most filthy, disgusting dirt covered playground feet! Tonight I took Josh to the park. He happened to have his crocs on because this wasn't a planned event. It worked to our advantage however. Halfway through our time there he kicked his shoes off and started running around the whole place barefoot. I would normally hate this, but we are working on getting through some of his tactile defenses and this was a perfect opportunity for practice. The playground is covered with chunks of recycled, cut up rubber tires. I knew it would be a challenge for him to touch this with his feet so I let him go for it. It's not everday that he is willing to do something like this. At first he was a bit uncomfortable, but he was having so much fun he worked right through it. He had a blast and I loved seeing him tackle this sensory difficulty while having so much fun. When we got home his feet were blacker than black. These pictures don't do them justice! I never knew I could love dirty feet so much. They are my favorite.

Mommy to Mom to Mother...

I got this in an email today... I thought it was worthy of posting in light of nearing Mother's Day.

Mommy to Mom to Mother

Real Mothers don't eat quiche;
They don't have time to make it.

Real Mothers know that their kitchen utensils
are probably in the sandbox.

Real Mothers often have sticky floors,
filthy ovens and happy kids.

Real Mothers know that dried play dough
Doesn't come out of carpets.

Real Mothers don't want to know what
The vacuum just sucked up...

Real Mothers sometimes ask 'Why me?'
And get their answer when a little
Voice says, 'Because I love you best.'

Real Mothers know that a child's growth
Is not measured by height or years or grade...
It is marked by the progression of Mommy to Mom to Mother.....

The Images of Mother

4 YEARS OF AGE - My Mommy can do anything!

8 YEARS OF AGE - My Mom knows a lot! A whole lot!

12 YEARS OF AGE - My Mother doesn't know everything!

14 YEARS OF AGE - My Mother? She wouldn't have a clue.

16 YEARS OF AGE - Mother? She's so five minutes ago.

18 YEARS OF AGE - That old woman? She's way out of date!

25 YEARS OF AGE - Well, she might know a little bit about it!

35 YEARS OF AGE - Before we decide, let's get Mom's opinion.

45 YEARS OF AGE - Wonder what Mom would have thought about it?

65 YEARS OF AGE - Wish I could talk it over with Mom.

The beauty of a woman is not in the clothes she wears, the figure she
carries, or the way she combs her hair.

The beauty of a woman must be seen from in her eyes,
Because that is the doorway to her heart,
The place where love resides.

The beauty of a woman is not in a facial mole,
But true beauty in a woman is reflected in her soul.
It is the caring that she lovingly gives, the passion that she
Shows, and the beauty of a woman with passing years only grows!

Wednesday, May 5, 2010

Another surgery scheduled...

Surgery is scheduled for June 8th! Just 7 days after Joshua's birthday. I am thinking about taking him to Sea World this year for his birthday weekend, but that is a whole other post. Anyway, the ENT surgeon will be exploring his airway with a scope (camera) to determine the actual injury causing Joshua to aspirate fluids and have a weak, raspy voice. The strong suspicion is that the nerve to the vocal cord was clipped during his PDA heart surgery in the NICU and it has caused one of the cords to be paralyzed. This will be a baseline to determine the extent of the paralyzation or rule it out completely. Another possible cause could be a build up of scar tissue from the prolonged and forceful intubations he had. We are fairly certain it is the cord issue, but this procedure will tell us exactly.

At the same time they will be looking at the adnoids to make sure they are healthy and acceptable in size. Two of my sisters have a history of abnormally large adnoids and tonsils that caused them to have extreme difficulty breathing at night. In turn, they grew only minimally in their elementary years. After having the adnoids removed they grew like weeds within months! If Joshua's seem to be too large, they will partially remove them. This could be one of the factors contributing to his speech being nasaly, as well as to his slow growth. There is always a catch 22 though. Joshua also has air escaping his nose when he speaks. This means that if they remove his whole adnoid, his speech could get worse. I guess the palate when he speaks would not have any adnoid cushion to hit against if they remove it all, so it would let even more air escape the nose. This is why they will only do a partial adnoidectomy (IF NEEDED).

Now we just have to decided whether or not to cancel the heart contrast study scheduled for the same time or not. They will go through the femoral artery in the groin to his heart with a bubbly contrast agent known to cause critical and fatal reactions. It is not a simple procedure like we previously thought. Prayers are needed for this decision!

Tuesday, May 4, 2010

Hannie's and Bobbie's...

Joshua has recently been adding an ie to the end of a couple of his words. It is so adorable. Of course I would love to keep hearing him say the words like this, but I have to try so hard to make him correct them. Damn speech delay! :) Anyway, when he says "hand" or "Bob" he adds the ie. So they come out sounding like hannie and Bobbie.
He just learned how to say hand because I was tracing his hand on this magnet doodler that he has. He loves this! He wants me to draw his hand 90% of the day. It's hilarious. He has even started to call me by name through this desire. I have found him screaming "mom" at me lately and when I look at him he has his big magnet board in his hand and he proceeds to yell "hannie" lol. Too cute for words. Wish I had it on video.
The name Bobbie originated from Sponge Bob the Nickelodeon character. I really despise this show and I used to say I would never let my child watch it. I have a sister who is 14 years younger than me so I've seen and heard alot of Sponge Bob in my day. However, just recently again, Joshua has been showing an interest in this show as I am changing through channels. It's not the show itself, just the actual drawing of the character Sponge Bob. So, I told him, "that's Sponge Bob." Well then he went ahead and said "Bob!" So how could I not get excited about that? Since then I have been showing him bits and pieces of the show. His interest is never longer than about 5 minutes so I am not worried about corruption just yet :) He does recognize him in stores and everything now though. I guess that will be neat when we take him to the Nick Hotel one day.